EDS Pregnancy, Birth, Postpartum, Parenting and Infant Feeding Series
The Pregnancy, Birth, and Postpartum/Parenting Handouts are being rewritten and updated with newly published studies, EDS Reproductive Survey and community input, and client studies. As I have time and resources this Winter I will complete the re-write, if you would like to supprt my work see my contribution info on this page or here.
What this series of handouts is NOT for
These are not documents to just hand over to your doctor/obstetrician/midwife. These are multiple page articles and it is a rare medical provider that will read even a one page article you share with them.
Unfortunately it is unrealistic to expect a clinician to become an expert in EDS and understand which aspects of EDS may or may not affect you and your reproductive system.
What they ARE for
Reading over yourself and deciding which aspects could possibly affect you with your type of EDS, taking you and your family’s history into account, because EDS affects each person differently.
This can be done with the help of people that are more focused on individualized support like a patient advocate, your doula, a maternal fetal specialist, an individualized childbirth educator and/or a member of your family.
Then presenting that individually detailed info to your clinician and making a plan for supporting your during your pregnancy, birth and postpartum.
How I can support you
Meet with you to go over the handout and help create an “EDS Birth Plan” to share with your care team.
Provide Individualized Evidence Based Birth®Childbirth Education that centers you and your needs.
Provide EDS Patient Advocacy Support by accompanying you a doctor’s appointment when you are presenting EDS information. I also can do virtual meetings with OBs or midwives that are interested in learning more.
Provide Doula services to advocate for your needs during birth.
Provide Disability Informed Lactation Support.
Want to support my work? EDS Research and Support is woefully underfunded and often left to those of us that have EDS. Did you see the Cort Does Science/Cortney Gensemer disheartening data about there being 0 funding for hEDS by the NIH since 1985?
PayPal to paypal.me/awalim
CashApp $ZiahMcK
Venmo @ZiahMcK
History of the Handout
2023 Completely rewrote the handout based on new research, client experiences, 2022 survey, and 3 years of Ehlers Danlos Society ECHO attendance. Divided it into four separate handouts- Pregnancy, Birth, Postpartum and Feeding. They are being peer reviewed currently and will be available Fall 2023.
2022 EDS & HSD Patient-Led Reproductive Health, Pregnancy, Birth and Postpartum Community Survey conducted by Erica Evans and myself
2019 Used an article on the Ehlers Danlos Society’s website written by British midwife as a template and updated it with current research, American medical terminology, plus added a modern and personal point of view on people with disabilities. Over 3 years grew into a 16 page handout.
2018 I began compiling a pregnancy and birth handout for my EDS Doula clients and friends